Our Daughter's Story
We noticed Brooklyn's seizures when she was two and a half years old. Her initial EEG showed absense seizures every 60 seconds, awake or sleeping. The seizures lasted anywhere from 2 seconds to 12 seconds. We were obviously distressed!
We could find no cause. MRI and EEG could not pinpoint a source. The seizures appear generalized. We tried Zarontin, Depakote, Lamictal and several others. As the years go by, her seizure pattern seems to slow down a little (giving us hope that she may outgrow them?). At six and a half years, her EEG shows seizures every five minutes. Some are very short. Some lasting up to 18 or 20 seconds. We estimate a hundred visible seizures daily. Brooklyn starts first grade.
Any parent will understand the emotional trama we've gone through. We had one doctor that (erroneously) told us that every seizure was leaving scar tissue behind in her brain. There was the time she had a seizure at the top a children's slide, lost her balance and fell off; the time she made an abrupt left turn while walking in a crowd of people and we couldn't catch up; her classmates yelling at her and shaking her to 'snap her out of it'; the time she was speaking into a microphone and had a seizure and the crowd erupted into laughter... Yet through this all, she has remained a bright and happy child. We are proud to be her parents.
Michael
We could find no cause. MRI and EEG could not pinpoint a source. The seizures appear generalized. We tried Zarontin, Depakote, Lamictal and several others. As the years go by, her seizure pattern seems to slow down a little (giving us hope that she may outgrow them?). At six and a half years, her EEG shows seizures every five minutes. Some are very short. Some lasting up to 18 or 20 seconds. We estimate a hundred visible seizures daily. Brooklyn starts first grade.
Any parent will understand the emotional trama we've gone through. We had one doctor that (erroneously) told us that every seizure was leaving scar tissue behind in her brain. There was the time she had a seizure at the top a children's slide, lost her balance and fell off; the time she made an abrupt left turn while walking in a crowd of people and we couldn't catch up; her classmates yelling at her and shaking her to 'snap her out of it'; the time she was speaking into a microphone and had a seizure and the crowd erupted into laughter... Yet through this all, she has remained a bright and happy child. We are proud to be her parents.
Michael
posted by Michael at Thursday, April 21, 2005
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